Resources and Information

In our experience, besides prayer, the next most helpful tool is research. I have spent many, many nights searching on the internet, some nights in medical libraries, and almost daily, I visit two message boards that give me information, ideas, new leads and comfort. Below, I will list some resources that have been useful to us. I cannot begin to thank the people who spent their time, and sometimes their careers researching, writing, publishing, and posting.




Muscular Dystrophy Association 
Mayo Clinic
Texas Children's Hospital
iVillage.com message boards "hypotonia"  "myopathy" "developmental delays"
Yahoo! Group "Myopathy"
Genereviews.com

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