Garrett has Mitochondrial Disease.
That's all I feel like I can say about that.
But it isn't all I can feel about it.
It is unfair, scary, and an unknown territory.
There's a huge, purple and orange elephant tromping around in the room everywhere we go.
Some say that Oscar and I will get to a point where we know the elephant is there, but it doesn't cause us to react or to feel so awful having it right there.
Right now I don't know that that point can come soon enough.
Irrational thoughts of what it would be like here without one of our children. God, please no.
We do not know the exact type of mito we are dealing with, but based on the types the specialist thinks it will be, the future is, well, let's say uncertain, at this point.
I will share more another night. We are in Idaho house hunting this weekend. Or maybe I get more exciting calling it homestead or house hunting!!! Looking for a cooler place where Garrett and Addie will be more comfy, and all three kiddos have more room to roam!! We think we have found a perfect little farmette out here even with a guest house!! We will finally get to see it and several other potential homesteads very soon.
Thanks for checking in, and when the dust settles with a diagnosis for Garrett, the final test that yields that info will be run on Addie....jsut a blood test.
Read "Diagnosis Search" and "Muscle Biopsy" from the menu on the left to see the actual results and more details.
Blessings, and watch out for the elephant poop if you come to our house......
That's all I feel like I can say about that.
But it isn't all I can feel about it.
It is unfair, scary, and an unknown territory.
There's a huge, purple and orange elephant tromping around in the room everywhere we go.
Some say that Oscar and I will get to a point where we know the elephant is there, but it doesn't cause us to react or to feel so awful having it right there.
Right now I don't know that that point can come soon enough.
Irrational thoughts of what it would be like here without one of our children. God, please no.
We do not know the exact type of mito we are dealing with, but based on the types the specialist thinks it will be, the future is, well, let's say uncertain, at this point.
I will share more another night. We are in Idaho house hunting this weekend. Or maybe I get more exciting calling it homestead or house hunting!!! Looking for a cooler place where Garrett and Addie will be more comfy, and all three kiddos have more room to roam!! We think we have found a perfect little farmette out here even with a guest house!! We will finally get to see it and several other potential homesteads very soon.
Thanks for checking in, and when the dust settles with a diagnosis for Garrett, the final test that yields that info will be run on Addie....jsut a blood test.
Read "Diagnosis Search" and "Muscle Biopsy" from the menu on the left to see the actual results and more details.
Blessings, and watch out for the elephant poop if you come to our house......
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